About

I am here because I worry about my health and want to share my knowledge with the world. I want to lighten interesting facts about different diseases and about our natural protecting from them.

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Matt Sames said,

October 6, 2010 @ 3:55 pm

I have been reading your blog posts and I find it to be fantastic that you are informing people of all of these health problems. I was wondering if you had ever heard of Giant Axonal Neuropathy also known as GAN. My Daughter Hannah suffers from this rare disease, my wife Lori and I where heartbroken when the doctors gave us the news that this disease was a death sentence. My wife and I just could not accept this and started paving the way towards a cure. In the spring of 2008 we stared Hannah Hope Fund in hopes to find other GAN patients and raise money for treatments. While GAN may be a rare, orphaned disease the work of Hannah’s Hope Fund has established a world-wide team of doctors that is on the cusp of a treatment that could lead to a cure, not just for GAN but for some ALS (Lou Gehrig’s) and Spinal Muscular Atrophy patients as well. What makes Hannah’s Hope Fund so unique is unlike many other diseases that are still only in the medical research phase toward finding a cure, scientists working on Hannah’s disease are on target to begin FDA approved clinical trials in 2011. The only thing in their way: the remaining $1.1 million. Hannah needs your help to spread awareness through your blog to reach this goal. I hope you can find it in your heart to help my little girl and I hope that we can find more GAN patients through your blog, I would love for them to know that there is indeed hope. Thank you so much. There is plenty of information on our website hannahshopefund.org if you need additional information do not hesitate to contact me.